From: Joyce and Herbert Stein [mailto:firstname.lastname@example.org]
Sent: Tuesday, September 10, 2013 12:26 AM To: Jonathan Blum, Deputy Administrator Director – CMS; Madam Secretary Kathleen Sebelius – HHS Subject: A continuing please for a favorable “Compassionate use” decision for the already implanted VNS depression patients…
Dear Mr. Blum,
I had some computer problems and was just able to retrieve my emails from yesterday.
I have copied and pasted below another email that I just read. I several minutes ago got off the telephone with the young woman who sent the email giving me verbal permission to share her correspondence publicly.
Need I say more to you or Madam Secretary Sebelius. Joyce, this young woman Amy and the other patients are running out time. They do not want to return to a living hell.
We are all pleading for a favorable “Compassionate use” decision from you or the Madam Secretary, now!
Joyce and Herbert Stein
1008 Trailmore Lane
Weston, FL 33326-2816
From: Amy [mailto:email@example.com] Sent: Monday, September 09, 2013 3:00 AM To: Joyce and Herbert Stein Subject: Re: A continuing please for a favorable “Compassionate use” decision for the already implanted VNS depression patients…
I really hope you receive an answer soon. Things are getting worse here…I started a new drug called Latuda and increased the Lamictal but I am feeling so bad tonight. I’m am crying uncontrollably and feeling hopeless. Life is getting back to what my “normal” used to be back before I had the VNS. If they want a real live experiment of what happens when the battery dies…here I am. Thank you for all your work and letters.