A communication recently received from one of the stepchildren…

From: Herbert Stein [mailto:fabrik@bellsouth.net]
Sent: Thursday, November 21, 2013 2:00 PM
Subject: Another illustration of Cyberonics disgraceful approach to their depression patients…

I just recently received an email from one of Cyberonics depression patients with whom I collaborate, amongst a number of patients.  I’d like to share with you the below communication after having received permission to do so.  In this instance I have redacted certain personal information but the context of the communication is self-explanatory.

In my opinion, I believe Cyberonics continues to disgracefully not acknowledge or address publicly the existence of this small population of depression patients implanted prior to CMS decision on or before May 4, 2007.  Worse yet I personally feel that Cyberonics also does a piss poor job of staying in touch with these patients as well as inadequately informing and answering questions from their attending physicians.

Sincerely,

Herb

Joyce and Herbert Stein

1008 Trailmore Lane

Weston, FL 33326-2816

(954) 349-8733

vnsdepression@gmail.com

http://www.vnstherapy-herb.blogspot.com

http://www.vnstherapy.wordpress.com

—————————————————————

NOTICE OF CONFIDENTIALITY / Disclaimer

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Disclaimer: This E-Mail is covered by the Electronic Communications Privacy Act, 18 U.S.C. §§ 2510-2521 and is legally privileged. The information contained in this E-Mail is intended only for use of the individual or entity named above. If the reader of this message is not the intended recipient, or the employee or agent responsible for delivering it to the intended recipient, you are hereby notified that any dissemination, distribution, or copying of this communication is strictly prohibited. If you receive this E-Mail in error, please notify the sender immediately at the email address and/or phone number above and delete the information from your computer. Please do not copy or use it for any purpose nor disclose its contents to any other person.

CONFIDENTIALITY NOTICE: This e-mail message including attachments, if any, is intended only for the person or entity to which it is addressed and may contain confidential and/or privileged material. Any unauthorized review, use, disclosure or distribution is prohibited. If you are not the intended recipient, please contact the sender by reply e-mail, destroy all copies of the original message, and do not disseminate it further. If you are the intended recipient but do not wish to receive communications through this medium, please advise the sender immediately.

////////////////////////////////////////////////////////////////////////////////////

From: (redacted) (redacted) [mailto:(redacted)]
Sent: Thursday, November 21, 2013 10:25 AM
To: Herbert Stein
Subject: Re: CYBX

Get them herb!!

This (redacted) started ect yesterday, 1 treatment kind of rough!  11 more to go.  The attending dr called cyberonics for an opinion on weather to keep vns on or off while being treated.  Guess what no answer.  Nice to know they aren’t just communicating with their clients, but even their dr are not getting answers.

As always thanks for your help, you are a champion to the ones crippled by this terrible disease.

Sincerely 

(redacted) (redacted)
Sent from my iPhone

On Nov 21, 2013, at 10:17 AM, “Herbert Stein” <fabrik@bellsouth.net> wrote:

Dear Dan,

Congratulations on another outstanding financial quarter.  Your stewardship of Cyberonics is to be highly commended.

On today’s financial teleconference a sole analyst asked a brief question about the depression indication.  It is amazing to me to hear how little informed or aware the financial community is as it relates to the depression indication.  This fact doesn’t surprise me as your company seemingly makes no effort or mention of the recent informal change of position by CMS toward those depression patients implanted on or before May 4, 2007 on either your corporate website or Facebook and as I’m finding so too are many attending physicians uninformed.

As a side note I also find it interesting that I am recently denied participation on your teleconferences especially knowing the fact that the therapy has been remarkably beneficial for my spouse and that in the past I was also allowed to participate and to pose questions to management.

As always, I wish you and yours wellness and continued success at your endeavor.

Sincerely,

Herb

vnsdepression@gmail.com

http://www.vnstherapy-herb.blogspot.com

http://www.vnstherapy.wordpress.com

—————————————————————

NOTICE OF CONFIDENTIALITY / Disclaimer

—————————————————————

Disclaimer: This E-Mail is covered by the Electronic Communications Privacy Act, 18 U.S.C. §§ 2510-2521 and is legally privileged. The information contained in this E-Mail is intended only for use of the individual or entity named above. If the reader of this message is not the intended recipient, or the employee or agent responsible for delivering it to the intended recipient, you are hereby notified that any dissemination, distribution, or copying of this communication is strictly prohibited. If you receive this E-Mail in error, please notify the sender immediately at the email address and/or phone number above and delete the information from your computer. Please do not copy or use it for any purpose nor disclose its contents to any other person.

CONFIDENTIALITY NOTICE: This e-mail message including attachments, if any, is intended only for the person or entity to which it is addressed and may contain confidential and/or privileged material. Any unauthorized review, use, disclosure or distribution is prohibited. If you are not the intended recipient, please contact the sender by reply e-mail, destroy all copies of the original message, and do not disseminate it further. If you are the intended recipient but do not wish to receive communications through this medium, please advise the sender immediately.

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About vnstherapy

I'm a very, very long-time support person and health care and mental health advocate/activist for my spouse Joyce as well as to others. I'm also a retired business executive and former Board Member, President and facilitator of a local chapter of DBSA as well as a Florida State appointment as a Guardian Advocate. I do not endorse, promote or advertise for any therapy, product or company. I do share our personal experiences, my research and knowledge in the hope it might benefit someone or do I give advice as to what one should or shouldn't do. I extend my best wishes for wellness to one and all and all the good you’d wish for yourselves.
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