“Unwanted stepchildren of Cyberonics”

To the VNS Facebook Site Administrator for Cyberonics,

I think the AES Annual Meeting 2013 and the photos from this convention are outstanding and a means of conveying the good this and other organizations do for the epilepsy patient population.

I still ask as a spouse of one of the “Unwanted stepchildren of Cyberonics”, the depression patients, why is there no mention and/or promotion relating to the depression patients? Why is there no coverage of the annual DBSA (Depression Bipolar Support Alliance) conventions or that of The Brain and Behavior Research Foundation or NAMI? Worse yet is your total denial of the existence of depression patients using the FDA approved VNS Therapy?

Isn’t it obvious to you folks that your lack of concern, acknowledgement or response is repugnant to many of the patients who utilize your device and therapy for depression and to their support persons as well who read this forum?

Isn’t it time you folks came out of the closet and admit you have others with just as serious an illness?

https://vnstherapy.wordpress.com/2013/12/11/unwanted-stepchildren-of-cyberonics-2/

Sincerely,

Herb

Joyce and Herbert Stein

1008 Trailmore Lane

Weston, FL 33326-2816

(954) 349-8733

vnsdepression@gmail.com

http://www.vnstherapy-herb.blogspot.com

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About vnstherapy

I'm a very, very long-time support person and health care and mental health advocate/activist for my spouse Joyce as well as to others. I'm also a retired business executive and former Board Member, President and facilitator of a local chapter of DBSA as well as a Florida State appointment as a Guardian Advocate. I do not endorse, promote or advertise for any therapy, product or company. I do share our personal experiences, my research and knowledge in the hope it might benefit someone or do I give advice as to what one should or shouldn't do. I extend my best wishes for wellness to one and all and all the good you’d wish for yourselves.
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One Response to “Unwanted stepchildren of Cyberonics”

  1. I am an Unwanted Stepchild Of Cyberonics. There will be a day when another company will find a way to use this very successful technology and find a way to get Medicare to cover it because they were persistent, smarter and more advanced in their trials and evidence. When that day arrives I will be happy to say good bye to Cyberonics cold and callous treatment of myself and the many other Unwanted Stepchildren and will be more than happy to back whatever company finds a way to take care of us.

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